This is the first time I have ever been able to speak to another parent of a child with CHARGE. It was exciting for me as I got to ask lots of questions. It was very encouraging to see her walking and running. She uses American Sign Language (ASL) to communicate since she is completely deaf. It was so great to be able to talk to someone who has been through some of the same things I have.
One thing I learned today is that I am so glad that I am taking an ASL class. I really want to learn more and be able to communicate with deaf and hard-of-hearing people.
I am so thankful for our time with Martha and Elizabeth today. Savannah and I are looking forward to visiting again soon!
2 comments:
Hi! Your blogpost just came up in my news alerts for CHARGE Syndrome - my daughter Kennedy is 12 years old and has CHARGE and we really value the opportunities we have when we get to meet other families who have kids with CHARGE - it's great to read another story about families meeting up! (Kennedy's blog is http://chargesyndrome.blogspot.com - I'm not great about updating it, though!)
Oh Joanna! I am so happy you got to meet someone else in your situation. I'm sure it was an encouragement to see an older CHARGE child and see the things that Savannah can and WILL accomplish. I hope you get to meet with others along your journey:-)
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