Savannah was scheduled to have her MRI tomorrow. We were all ready and prepared. We just received a phone call from the anesthesia team (at 4:45 pm). Apparently, this particular team is not equipped to handle the type of sedation Savannah needs for the MRI and they need us to reschedule. Reschedule??? Really? Oh, and now the office is closed so I can't call and reschedule.
She told me that Savannah needs general anesthesia (which I thought she was already getting) and that a different team handles it. When I told her that she did not require general anesthesia for the last procedure she had (ABR test and removing PE tubes) she said she saw that in her file and that during that procedure Savannah had a laryngospasm. The anesthesiologist on this team was the one there during that procedure and that he didn't want that to happen to her again. Guess what? They never told us this happened last year. I am just about fed up with them NOT telling us important information. I feel like this is something we should have been told - that way we would always know that she has to have general anesthesia and all this confusion can be avoided. UGH!
Lessons learned the hard way I guess. From now on I will always ask for specifics of how the procedure went and if there were any "incidents." We still have to go to Chapel Hill for another appointment tomorrow, so I will be rescheduling in person. Let's just hope this way they will get it right. One can dream, right??
2 comments:
Praying for you. and for who ever you talk with on Weds. Lord Keep Savannah in your hands. There is a reason you did not want them to find out until now. Keeping them informed in Your timing. help Joanna and Jonathan to rely not on their own understandings but seek yours. I can't imagine what they are thinking, but I know you love them and so do I.
I'm so sorry you've been faced with another let-down with Savannah's care. I'm sure it makes you feel even more helpless in this arena. I will be praying for God to help you truly give it all to Him and trust Him to take care of His child who He loves so much...
I was just reading this week about how trouble and tribulation are like holes in our lives. But the holes help us see His light more clearly.
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